Registries

The NNDC is leading a national effort to create a comprehensive research registry to facilitate the kind of large-scale, longitudinal, multi-site studies needed to identify predictors of risk and resilience that can eventually lead to the development of early intervention or even prevention strategies for depression and bipolar disorders.

Building the registry is an ambitious task involving the compilation, standardization, analysis and archiving of data from mental healthcare, primary care and community settings as well as information from a variety of NNDC projects including biomarker measures, clinical, observational and trial data, economic data and more.

A vital milestone in this project was the formation NNDC Data Coordinating Center (DaCC), a de-identified database management system currently being operated in conjunction with the Michigan Institute for Clinical and Health Research (MICHR) at the University of Michigan, which is paving the way for future research endeavors by compiling and standardizing data collection and ensuring platform compatibility across NNDC sites.